Research Suggests 1 in 100 Brits at Risk for Coeliac Disease
11/01/04 - PRNewswire
One in a hundred Britons could be unaware they are at risk from coeliac disease due to mis-diagnosis, new independent research, commissioned by Coeliac UK, has revealed. LONDON, November 1 /PRNewswire/ -- One in a hundred Britons could be unaware they are at risk from
coeliac disease due to mis-diagnosis, new independent research, commissioned
by Coeliac UK, has revealed.
Alarmingly the research has identified low awareness of the
symptoms of coeliac disease (pronounced seeliac) and the lack of correct
diagnosis among GPs. If left untreated coeliac disease can result in serious
complications such as osteoporosis and gut cancer.
With at least 250,000 individuals in the UK who have been diagnosed with
coeliac disease, and a predicted further 500,000 undiagnosed cases, the need
for greater awareness among GPs in driving diagnosis is crucial.
The research, which included an internet survey of coeliac patients and
group discussions with GPs, revealed that among those GPs interviewed, there
is common acceptance that coeliac disease is under diagnosed with most
admitting that it is something they are not knowledgeable about.
Interestingly, few were able to recall a personal experience whereby they
identified the disease in any one patient.
The patient survey revealed that nearly 50% of diagnosis was accidental -
a result of an investigation for some other condition, with 50% confirming
their diagnosis was concluded once everything else had been ruled out!
Only 12% of patients claimed that coeliac disease was the first thing
their GP thought of and a further 10% of patients were only diagnosed once
they themselves had suggested the possibility of coeliac disease to their GP.
Dr William Dickey, a gastroenterologist specialising in coeliac disease
said: "Patients with chronic diarrhoea and other gut symptoms or unexplained
anaemia may see various medical practitioners over a period of years before
the diagnosis of coeliac disease is made. Often symptoms are attributed to
irritable bowel syndrome. I believe that general practitioners have a key
role to play in the diagnosis and management of coeliac disease and
initiatives are needed to facilitate this."
Andrew Ladds, Chief Executive of Coeliac UK, explains: "If we had GBP10m
- that's one day's worth of what the NHS is spending on diabetes, we could
make a huge impact on many people's lives without having to treat them with
expensive drugs."
Coeliac disease is caused by sensitivity to gluten which is a protein
found in wheat, rye, barley and in some cases, oats. It is now one of the
highest food allergies/intolerances in terms of prevalence but by far the
lowest in awareness.
For further information about coeliac disease contact Coeliac UK's
helpline on +44(0)870-444-8804 or visit their website - www.coeliac.co.uk.
David Clarke at Fuel, tel +44(0)20-7498-8211